Tuesday 10 January 2012

TP53 Forum Now Open

We have previously mentioned the founding of the George Pantziarka TP53 Trust, the first group in the UK dedicated to Li Fraumeni Syndrome (LFS) and other TP53 disorders. The trust is named in honour of my son, George, who passed away in April 2011 after battling with his third cancer, an osteosarcoma of the mandible. The work to set up the charity is proceeding, and I am pleased to announce that the website for the trust is now live at:

Part of the site is the forum, which is we hope will become central to the trust. If you or your family are affected by Li Fraumeni Syndrome or other TP53 disorder please visit the forum, register and introduce yourselves. As a community people with LFS and other TP53 disorders are isolated and underserved, together we can work to change that.

No comments:

Post a Comment